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This information comes from various sources and is provided for general information purposes only and is unverified and unendorsed. We do not recommend, endorse or make any representation about the efficacy or suitability of any specific tests, products or treatments that may be contained on this website.
In some cases our members have contributed their thoughts and experiences for the benefit of other sufferers. We feel this sort of information is extremely useful as only a sufferer of BEB can explain what is is like to live with BEB – please note that it is not intended or implied to be a substitute for professional medical advice. and again we stress that it is unverified and unendorsed.

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