CASE HISTORIES

We have started publishing accounts of the difficulties involved in obtaining a diagnosis and also individual experiences of the condition. It is a lot easier these days than it was in years gone by as more doctors are becoming aware of BEB.

If you would like to let us know of your own experiences, it would be very helpful to others who are in the same situation. You would not be identified. If you are not already registered for this site, please register and send your story via the Webmaster link on the Contact Us page.

REGISTRATION

If you suffer from BEB, or are interested in supporting those with BEB, please register your interest by filling in the form. There is no cost to register. Where you see that a field is (required) this means that you must fill in that field. Fields not marked (required) are optional but it would certainly help us if you would fill them in.

If you don’t have a computer of your own, perhaps there is someone who could receive emails on your behalf. If so, use that address in the Email field.

If you do not receive an acknowledgement in a day or two, please check your email mailbox setup to make sure it is working as we often receive our emails back saying “Mailbox unavailable”.

Some of our members are happy to be contacted to answer your questions and to share their own experiences. If you would like to do to this, please select Yes in answer to the Contact question in the form.