Check to see if there is a support group or support person in your State.
WA QLD NSW VIC SA TAS NT ACT
NO SUPPORT GROUP IN YOUR STATE?
If your State doesn’t have a support group, why not get one going? You could prepare a small flyer suggesting people get in touch with you with a view to meeting and next time you visit your doctor, take along some flyers and ask him to give them out to his BEB patients.
Read how the WA Support Group began.
SUPPORT GROUPS IN OTHER COUNTRIES
Benign Essential Blepharospasm Research Foundation (BEBRF)
BEB Canadian Research Foundation Inc
Northern Blepharospasm Dystonia Society Group
Tel: 0845 899 7101